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Rome Reports

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Vatican brings world experts together on rare diseases

If there were different categories for disease the "rareâ? category would be in last place. So simply put, they are diseases that are so rare that no time or money is spent to find a cure. That's why the Vatican has called for a congress in Rome from November 10 to 12. Speakers will include different world experts who will exchange various experiences and work to find solutions. It is estimated that there are 7,000 rare diseases, which affect eight percent of the world population. MSGR. JEAN-MARIE MUSIVI MUPENDAWATU Secretary, Pont. Council for Health Care Workers "As we well know in the world of suffering, in the field of health, there has always been and will always be the Church. FLASH.  There are still countries where the Church covers for the lack of medical care. Many have given their lives. Think of the last Ebola epidemic." FR. AUGUSTO CHENDI Pontifical Council for Health Care Workers "I think it's important because this problem has remained in silence and this silence must be broken. Not only in the case of rare diseases but also in the case of neglected diseases." Thus, the other major theme at this conference focuses on forgotten or neglected diseases, those occurring in places particularly hit by poverty or war. There are an estimated one billion people affected worldwide. These include diseases such as rabies or leprosy, which under normal conditions could be prevented, but they are never a priority. JRB/MB AA -SV -PR up:MB